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Preparedness Resources for the Power-Dependent Medical Equipment Population

Webinar 8/18: Preparedness Resources for the Power-Dependent Medical Equipment PopulationRegister to attend the webinar on Tuesday, August 18 at 12:00 - 1:00 p.m. ET.The Federal Emergency Management Agency (FEMA) is hosting a webinar about how people who rely on electricity- and battery-dependent assistive technology and durable medical equipment can prepare for emergencies. Subject matter experts will offer emergency preparedness tips and resources, including checklists, to assist in planning for a power outage. They will also provide guidance on how people with disabilities can prepare for extreme heat events.FEMA works to ensure equitable access for all to any services and programs that are provided by the agency. If you need a reasonable accommodation, please make your request in an email to fema-r2-prepares@fema.dhs.gov. Last minute requests will be accepted, but may not be possible to fulfill.Register for the webinar.
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Early Access to Milestone Tracker App-Deadline to Reply is TODAY!

The Centers for Disease Control and Prevention’s (CDC) Learn the Signs. Act Early. program is updating its Milestone Tracker app, a mobile app designed to help parents track their children’s developmental milestones with easy-to-read illustrated checklists, encourage their children’s development with tips and activities, and more! Before the newest version of the app is released, they are looking for parents who are willing to download the test version of the app, try it out for a few weeks, provide feedback, and receive a $50 gift card in appreciation for their time.Four Easy Steps to Participate!If you would like to participate, please email Britney.Ray@porternovelli.com by August 12th with the following information:Your NameContact Information (email address, telephone number, best time to reach you)Number of children and age of each childType of phone you have (iPhone or Android) After your email is received we will send you a brief survey to determine if you are eligible to parti…

New training opportunity – Enhancing person centered outcomes through the LifeCourse Framework

The Bureau of Developmental Disabilities Services is pleased to offer a three part webinar training series providing information and techniques to aide in the development of meaningful outcomes through the person centered individualized support plan by utilizing LifeCourse principles and tools. We will explore and demonstrate how practicing the thinking and using the tools will result in a plan that is meaningful, appropriate, and supports the individual in living their best life.This training is open to individuals, families, case managers and waiver service providers. All attendees can expect to learn more about their valued role as a member of the individualized support team and how they influence the development and success of a plan that is strength based, person centered and utilizes integrated supports.Participation in all three sessions is not required but recommended. Participants will receive a certificate of attendance for each session they attend. Participants who attend a…

Oral Health for Hoosiers with Disabilities: Survey of Family Caregivers ending August 14

Are you a Parent or Family Caregiver of an individual with a disability? Survey ending August 14The Center for Health Equity at the Indiana Institute on Disability and Community wants to hear from parents and family caregivers of individuals (minor or adult) with disabilities, about their child’s dental care experiences and oral health needs in Indiana. The Center is inviting family caregivers to complete survey by August 14. The results will help us better understand how oral health can be improved for Hoosiers with disabilities. The first 300 participants will be eligible for a $10 electronic gift card for completing the survey. This study is funded by the Indiana Governor’s Council for People with Disabilities.All responses will be released as part of group summaries, and individual responses will remain anonymous. The entire survey should take no more than 30 minutes to complete.To participate in the electronic survey, click on the following link: https://go.iu.edu/2Sh8If you have…

Patient, Parent, and Family Member Leadership Opportunity

The Midwest Genetics Network is currently recruiting individuals with a genetic condition as well as parents and other family members to join as stakeholders. This seven-state initiative focuses on improving access to genetic services, particularly for patients and families from underserved communities. Patient and family representatives can participate in virtual meetings in various focus areas, as well as our new dedicated Patient and Family Council. The Patient and Family Council is open to any individual with a genetic condition, parents and other family members from within the seven-state region.The Midwest Genetics Network recognizes that individuals with genetic conditions and their family members bring an important and unique perspective to the work and are valued for their knowledge and experience. The Patient and Family Council offers an opportunity for patients, parents, and family representatives to connect with others, provide input on projects related to increasing acces…

New video features Indiana 211

Last month, Indiana’s statewide community resource referral agency, Indiana 211, became part of the FSSA family. The new video highlights the many ways 211 serves Hoosiers, from helping find enough food for families, housing, or many other local resources. The video features several of the Indiana 211 community resource navigators who LISTEN to Hoosiers every day and who will work hard to help meet their unique needs.