Tuesday, April 2, 2013

Resources for you




Each month, Family Voices Indiana provides the families we serve with a summary of our hottest Facebook posts. If you missed us on Facebook, here is the latest!

Awareness:
March was Trisomy Awareness Month (http://trisomy.org/), Cerebral Palsy Awareness Month (Http://nichcy.org/disability/specific/cp), and Disability Awareness Month.

March 6, Spread the Word to End the Word. Learn why the R-word hurts so much by reading this.

March 10, Parents of Preemies Day is a national day of awareness recognizing the courage and commitment it takes to stay strong and resilient when premature birth turns a family's world upside down. We know some of you are preemie parents. If you're not, you can get a glimpse into the life of a preemie parent here: http://www.tampabay.com/specials/2012/reports/juniper/

March 21, World Down Syndrome Day celebrating the third copy of the 21st chromosome. Learn more here: http://www.ndss.org/About-NDSS/Newsroom/Recent-News/World-Down-Syndrome-Day-2013/

March 25, National Cerebral Palsy Awareness Day. Read more at Love That Max.

March 26, Purple Day dedicated to increasing the awareness of epilepsy. Learn what to do in case of a seizure here: http://www.epilepsy.com/epilepsy/firstaid.

March 3-9, Sleep Awareness Week. Here's an article about spotting sleep problems in children with special health care needs. Be sure to talk with your child's doctor if you have concerns: http://news.health.com/2013/03/05/spotting-sleep-problems-in-special-needs-children/.

Family Voices:
Facebook fans liked our many inspirational quotes. Be sure to check out our page for a pick-me-up.
Check out our Family Voices Staff Spotlights! March’s page featured specialists Michelle Green and Dehidry Santos Genao as well as Maison Kurmay, son of specialist Traci Kurmay.
We like the site One Place for Special Needs. It offers resources on a variety of topics, including holiday celebration modifications.
We drew inspiration from Emily Rapp, a mother who turned to writing in order to grieve the loss of her son. We encourage you to read this article about parenting a child with a fatal diagnosis.
In her article, “How Special Needs Parenting Compares To Typical Parenting,” Ellen Seidman says, "The world may perceive us as being unhappier than other parents. And yes, we may very well have more pressures and stress. But the truth is, we get just as much bliss in our children as other parents do from theirs. They may have special needs, but they are not 'defective.' They are our children. In fact, our happiness can be that much greater because our kids work so hard for their achievements. The first steps my son took at age 3 weren’t just milestones—they were miracles."
We are our children’s best advocates, and many of us have learned, “there just isn’t a teacher, a doctor or other well-meaning professional who definitively knows what is 'best' for my child.” Read more about one mother’s experience here.
How do you answer the question, “What’s wrong with him?” Are you empowering your child to have confidence, dignity, and to be an advocate for himself? This mom has a great response in her blog.
Listen to this NPR interview about a ‘Good Enough’ Dad and his amazing son, Tim who is a restaurant owner and has Down Syndrome. If you want to speak to another great dad, ask to speak with our specialist, Brian Repogle.
These ladies share the lessons they’ve learned about life, parenting, and themselves through their journey as parents of special needs children.
We liked this article highlighting that “children with a disability do not have a life ‘minus.’ They have a life, period. It’s not some other child’s life…It’s their life.”

Training and Learning Opportunities:
Family Voices works to fulfill our mission of empowering families by providing you with educational opportunities and resources. Check our website frequently for learning resources by visiting: http://www.fvindiana.org/trainingThis month, we shared the following on Facebook.
The ZERO TO THREE Web exclusive is an interactive learning tool designed to help parents and caregivers encourage their young children's early learning. You can find it here: http://www.zerotothree.org/early-care-education/school-readiness-interactive-birth-to-3/
It’s IEP season! Here’s a handy worksheet to help you prepare for your child’s case conference. If you need additional assistance or have questions, please call us!
HANDS in Autism Interdisciplinary Training and Resource Center is hosting a workshop series consisting of multiple FREE workshops for school staff, providers, and families across Indiana: Goshen, La Porte, Evansville, Indianapolis, and New Haven. Webinars are offered as well! Many have a focus on behavior, which is an FAQ. Check them out and SHARE this with others.

Newsworthy:
We've created a FB page for our Latino families who prefer information in Spanish and/or would like to connect with other families. Check it out: https://www.facebook.com/VocesDeFamiliaDeIndiana.
Family Voices Indiana congratulates our board president, Steve Veihweg: he has been appointed the Indiana Act Early Ambassador by the Centers for Disease Control and Prevention. Act Early ambassadors represent the CDC in the organization’s effort to improve early intervention practices. Learn more about the Act Early campaign and resources here: http://www.cdc.gov/ncbddd/actearly/index.html.
Many families are starting to think about camp for the summer. Be sure to check with your local YMCA, parks, libraries and other programs that might accommodate a child with special needs within the regular camp; many have inclusion specialists or other ways to make camp meaningful and successful for all children. IIDC also has this list: http://www.iidc.indiana.edu/?pageId=3423.


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