Each month, Family Voices Indiana provides the families we serve with a summary of the month’s hottest items. If you missed us on Facebook in February, here is the latest!
Febraury 2-8, Burn Awareness Week
February 4, World Cancer Day
February 7-14, Congenital Heart Defects Week
February 15, Angelman Syndrome Awareness Day
February 18, Asperger’s Syndrome Awareness Day
February 28, Rare Disease Day
Check out our Family Voices Staff Spotlights! This month’s page featured specialist Kerry Bonney, Project Coordinator, Jennifer Akers, and Cyndi Johnson’s daughter, Rebecca.
Facebook fans liked our many inspirational quotes. Be sure to check out our page for a pick-me-up. Also, we encourage you to share our page with friends using the share or invite features!
"I want to look my child in the eye, loving every inch of potential and pain, saying, 'You are my son. You are defined by your experiences and your reactions to them. You are defined by your mind and your body. You are defined by your kindness and your faith and your integrity. You are defined by your disability. And every piece of you is beauty.'" Read the article here: http://www.whatdoyoudodear.com/2014/02/my-sons-disability-defines-him-and-why.html.
Training and Learning Opportunities:
Family Voices works to fulfill our mission of empowering families by providing you with educational opportunities and resources. Check our website frequently for learning resources by visiting: http://www.fvindiana.org/training. This month, we shared the following on Facebook:
Are you concerned that your child might have sensory issues? This article has some basic questions you can use as a guide, and suggestions on steps to take next. http://nspt4kids.com/parenting/signs-of-a-sensory-issue-north-shore-pediatric-therapy
Unlike electric wheelchairs, which are usually reserved by kids above age three, Galloway’s cars can be used in the critical early years of development. He estimates that so far Go Baby Go has retrofitted an estimated 100 toy cars, a small dent for the more than half a million American children under the age of five who have mobility challenges. He will share the plans to adapt toy cars with anyone who wants them. More info here: http://www.nationswell.com/babiesdrivingracecars/.
The Well Visit Planner helps you identify and prioritize things you'd like to discuss with your child's doctor. It's available in English and Spanish here: https://www.wellvisitplanner.org/.
Families who prefer information in Spanish and/or would like to connect with other Latino families are invited to check out our Spanish Facebook page: https://www.facebook.com/VocesDeFamiliaDeIndiana.
We also host Pinterest boards http://pinterest.com/fvindiana/; a YouTube Channel, http://bit.ly/1a28nTM; text messaging, text "FVIndiana" to 313131 for English or "FVIndianaEs" to 313131 for Spanish; a blog www.fvindiana.blogspot.com; and Twitter, https://twitter.com/FVIndiana. Each outlet serves a slightly different purpose. We encourage you to try them all and use the one(s) that serve you best!
Important information for families of children with autism who are being targeted for the Family Supports waiver was recently released. Read it here: http://www.fvindiana.blogspot.com/2014/02/important-info-for-families-with-child.html.
Family Voices encourages you to use your voice to influence care, public and private policy, and educate others. In that vein, we strive to share with you opportunities to collaborate with others to improve the systems we engage. Here are some upcoming opportunities: