Monday, June 2, 2014

#Resources for You

Each month, Family Voices Indiana provides the families we serve with a summary of the month’s hottest items. If you missed us on Facebook in May, here is the latest!

Awareness:
PKU Awareness Month.  Learn more here: http://www.npkua.org/.
National Foster Care Month. Learn more here: https://www.childwelfare.gov/fostercaremonth/. For information about becoming a foster parent in IN, check here: http://www.in.gov/dcs/2982.htm.
Cystic Fibrosis Awareness Month. Learn more here: http://www.cff.org/.
Asthma Awareness Month. Learn more here: http://www.cdc.gov/Features/AsthmaAwareness/.
Ehlers-Danlos Syndrome Awareness Month. Learn more here: http://www.ednf.org/.
Better Hearing and Speech Month. Listen to this podcast to learn what to expect from a newborn hearing screening, why it is important, and how to identify the signs of hearing loss within the first year of a child’s life: http://bit.ly/RkbheG.
Cri Du Chat Awareness Week, May 4-10. Learn more here: http://fivepminus.org/.


Family Voices:
Check out our Family Voices Staff Spotlights! This month’s page featured specialist Marlene Lugo.
Facebook fans liked our many inspirational quotes. Be sure to check out our page for a pick-me-up. Also, we encourage you to share our page with friends using the share or invite features!
"'She'll grow out of it', 'You're just being negative' and 'He makes eye contact so he can't be autistic'. These are the type of comments which can upset even the most balanced person, but are particularly hurtful and frustrating when they come from the people who are supposed to be on your side: your family." Read the "How Do I Get My Family To Accept My Child's Diagnosis?" here: bit.ly/1fI6adH.
"We were full of grand plans and hopeful dreams. And then, within moments of delivery, our world changed. We were no longer looking at a distant future and planning on dreams of that future–we were looking at it."Read the article from Kat's Cafe here: http://katscafe.org/epilepsy-autism-rare-disease-special-needs-family/.
Newsworthy:
Families who prefer information in Spanish and/or would like to connect with other Latino families are invited to check out our Spanish Facebook page: https://www.facebook.com/VocesDeFamiliaDeIndiana.
We also host Pinterest boards http://pinterest.com/fvindiana/; a YouTube Channel, http://bit.ly/1a28nTM; text messaging, text "FVIndiana" to 313131 for English or "FVIndianaEs" to 313131 for Spanish; a blog www.fvindiana.blogspot.com; and Twitter,  https://twitter.com/FVIndiana. Each outlet serves a slightly different purpose. We encourage you to try them all and use the one(s) that serve you best!
Remember, Medicaid and CHIP offer free or low-cost health coverage for children and teens in Indiana. Enrollment is always open. Learn more at usat.ly/1lGhSrr.
 
Collaboration:
Family Voices encourages you to use your voice to influence care, public and private policy, and educate others. In that vein, we strive to share with you opportunities to collaborate with others to improve the systems we engage. Here are some upcoming opportunities:

Take this survey about community services:
http://bit.ly/Rl2p88


We're hoping we can learn from each other with our Tuesday Tips. We know you have a lot of ideas for adapting items, saving time and money, organizing and more. We'll start the conversation with some ideas, and we hope you'll add to the list. Let's try to make things easier for all of us! Join the discussion or simply browse the tips on our Facebook page.           

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