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Showing posts from August 5, 2018

Family Voices Indiana Comments to ID/DD Task Force

By working with family leaders and professional partners at the local, state, regional, and national levels since 1992, Family Voices has brought a respected family perspective to improving health care programs and policies and ensuring that health care systems include, listen to, and honor the voices of families.

As the state affiliate of Family Voices, we advocate for families and individuals with special health care needs. In that role, we have provided public comments to the ID/DD Task Force. 

If you have comments, even if we've mentioned them in ours, please submit them to the task force by emailing:

You can find the meeting schedule, agenda and minutes here:

IDDD Task Force Comments by Family Voices Indiana on Scribd


By Kirk Larson
Social Security Washington Public Affairs Specialist While it may be best known for retirement, Social Security is also here to help you get back to work if you are disabled. For millions of people, work isn’t just a source of income, it’s a vital part of who they are — it gives them purpose and pride — it’s a connection to community. If you’re getting Social Security disability benefits, we have good news for you. Social Security’s work incentives and Ticket to Work programs can help you if you’re interested in working. Special rules make it possible for people receiving Social Security disability benefits or Supplemental Security Income (SSI) to work and still receive monthly payments. The Ticket to Work program may help you if you’d like to work. You can receive: Free vocational rehabilitation;Training;Job referrals; andOther employment support.Read more about working while collecting disability benefits. Work incentives include: Continued cash benefits for a time whil…

Using #LifeCourse To Problem Solve a Crisis

Shay, a support coordinator from Progressive Community Services in Buchanan County, Missouri, explains how she used the Tool for Developing a Vision as well as the Integrated Supports Star Worksheet to help an individual who lost her mother get through a crisis situation to create a new future for herself and prepare for independent living.

Palliative, Hospice, and Bereavement Resources

As parents of children with special health care needs, we often face difficult conversations and decisions. This collection of articles deals with palliative and hospice care. We hope it can serve as a resource for the most difficult decisions that ever have to be made.

May 2018 Offering Support in Crisis/Traumatic SituationsFebruary 2018 Celebrating the Past and the Future of Pediatric Palliative/Hospice Care, ChiPPS, and the ChiPPS E-JournalNovember 2017 Perinatal and Neonatal Palliative/Hospice CareAugust 2017 Spiritual Care of Children and Their FamiliesMay 2017 Care of Siblings and GrandparentsFebruary 2017 Pediatric Palliative and Hospice CareNovember 2016 Pain Management with ChildrenAugust 2016 Communicating with Children and ParentsMay 2016 Bereavement and Care, Part TwoFebruary 2016 Exploring selected issues in bereavement and care, part one.November, 2015 Establishing and Providing Pediatric Palliative/Hospice Care in Different Settings or in Different Ways, Part TwoAugust, …

How Your Supplemental Security Income Changes with Earnings

If you are working, continue to have a disability, have resources under $2,000 (for an individual), and are receiving Supplemental Security Income (SSI), the Social Security Administration (SSA) will allow you to continue to be eligible for SSI and will gradually reduce your SSI cash payment as your earnings increase. The amount of your adjusted SSI check will depend on your total countable income (which includes earned and unearned income). Whenever your earnings increase or decrease, your SSI payment will be adjusted.

How It Works

By applying some exclusions to your income and earnings, SSA will gradually reduce your SSI check as your earnings from work grow.

SSI recipients… who are working are still eligible to receive SSI if they continue have a disability and meet other requirements (such as income and resource limits). When working, the SSI payment will gradually decrease as earnings increase by approximately $1 for every $2 earned.

As SSA calculates your benefits, it will first…