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Showing posts from January 26, 2020

DOT Seeks Input on Proposal to Make Airplane Lavatories More Accessible - due March 2, 2020

The U.S. Department of Transportation (DOT) seeks public comments on a new proposed rule to improve restroom access for passengers with disabilities on single-aisle aircraft with 125 or more seats. The rule is based on negotiated rulemaking undertaken by DOT's Advisory Committee on Accessible Air Transportation, which included aviation industry representatives, disability rights advocates, and other stakeholders. The proposed regulation addresses lavatory interiors, on-board wheelchairs, and training of flight attendants. Comments are due by March 2, 2020, and can be submitted here

Block Grants for Medicaid Funding

Earlier today, the Centers for Medicare and Medicaid Services issued guidance encouraging states to apply for waivers to block grant Medicaid funding at the state level. This guidance aims to radically restructure Medicaid, which provides health insurance coverage to 74 million people nationally.

Below are resources from the National Health Law Program to better help advocates understand block grant funding and how it can jeopardize access to quality health care for low-income individuals.
Background on Block Grants by Family Voices Indiana on Scribd Block Grants-Talking Points by Family Voices Indiana on Scribd

Originally presented by the National Health Law Program.  For more information about the National Health Law Program and their work, visit

Opportunity to share your story: $25 stipend

Family Voices Indiana shares this opportunity to positively impact future social workers:

We are seeking 12 families of children with all kinds of disabilities of any age who are willing to be interviewed by graduate social work students to share about their experiences raising a child with special health care needs or disabilities. Interviews will take place during the Spring Semester of 2020 (in February or March) at a mutually agreed upon location and time. 

Ideally the interview would occur in the family’s home if possible so the student can fully appreciate the family experience. 

The interview should take 60 to 90 minutes.  

Families will receive a $25.00 stipend for their participation upon completion of the interview. 

Please RSVP your interest to by January 31, 2020.

Interested families should send the following to
Adult Name Child Name Child Age Child Diagnosis Phone number to reach adult Email to reach adult Address Best days and times to reach adult

Don’t Miss the FINAL workshop to learn how to Be The Voice in the ongoing 2020 Indiana Legislative Session

Don’t Miss the FINAL workshop to learn how toBe The Voicein the ongoing 2020 IndianaLegislativeSession Still want to haveYOURsay in legislation this legislative session? Still want to learn how to makeYOURvoice heard? Still want to know what to say to make sure change happens thatYOUwant? Then be sure to join theIndiana Statewide Independent Living Council (INSILC)for itsFREE third and final workshop in the INSILCLegislativeAdvocacy WorkshopSeriesdeveloped BY YOUR PEERS WITH DISABILITIES,FOR ITS PEERS WITH DISABILITIES, COMMUNITY PARTNERS AND ALLIES.

IMPORTANT MESSAGE for families whose children receive SSI

proposed rule from the Social Security Administration (SSA) would require some children receiving Supplemental Security Income (SSI) benefits to prove their continuing disability more frequently than they must do now.  More frequent disability reviews will be required for children with certain behavioral conditions, cancers, asthma, and certain other conditions. Additional reviews may also be required when children are nearing ages 6 and 12.  See this fact sheet for more information.
It is important for the SSA to hear from families.  It is easy to submit commentseither by: (1) using pre-written comments from The Arc, which you should personalize, OR (2) writing or attaching comments on this page of the website. Comments on this website can be anonymous if you wish (just don’t fill in your name).  
Comments can be very simple, such as: As the parent of a child who receives SSI benefits, I oppose the proposed rule that would require more frequent disability reviews.  Th…

Input Sought from Family Caregivers - due February 7, 2020 (updated)

The Administration for Community Living (ACL) is seeking input on the challenges faced by family caregivers from individuals and organizations that capture the breadth of the family caregiving experience. This information will be used to assist the RAISE Family Caregiving Advisory Council in developing its initial report to Congress and to inform the development of the national family caregiving strategy. It also will be used to help the Council plan future activities, including public listening sessions that will begin in 2020. To provide your input, please complete the form by 11:59 p.m. EST on Friday, February 7, 2020.