Family Voices, in partnership with Expecting Health, is recruiting 8-12 families to participate in a content focus group for Expecting Health’s newborn screening (NBS) education training program, Navigate Newborn Screening. Families will be asked to complete a brief pre-test via Survey Monkey. Once they have completed the Survey Monkey pre-test, they will next be asked to complete the Navigate Newborn Screening module. Finally, after completing the pre-test, participants will be asked to complete a post-test via Survey Monkey. After the completion of the post-test, families will participate in a call to discuss your experience with the training. Recruitment Criteria Eligible participants will be: · Expectant parents · New parents (within 2 years of birth) · Families affected by NBS condition · Someone with a NBS condition We are have a particular interest in getting the feedback of families that are
Family Voices Indiana is a family-led organization that provides information, education, training, outreach, and peer support to families of children and youth with special health care needs and the professionals who serve them.