I want to celebrate the 1-year anniversary of the passing of the ACA. I celebrate it for the HUGE potential it has for my family. And I wish to celebrate the provisions that are already helping us. I'm the mom of two wonderful children, both with disabilities and special health care needs. I celebrate the fabulous joys and gifts they have brought to my life. But let's face it: a HUGE portion of my life is now taken over by dealing with the financing of their health care. It chews up large portions of my time, and it adds enormous stress and guilt to my already highly stressful life. But I'm one of the lucky ones. You see, my husband has a job that brings in a good income. (I used to, before I stopped working to care for my kids – but that's another story.) And we have "good" private insurance. And the ACA is working to ensure the continuity of coverage we so desperately need to remain off of public assistance programs. What does that look like? W
Family Voices Indiana is a family-led organization that provides information, education, training, outreach, and peer support to families of children and youth with special health care needs and the professionals who serve them.