FV Indiana members are sharing what the impact of proposed changes to Medicaid Waivers will be in their lives. We share their stories, and encourage each of you to continue contacting your Legislators . First of all, my family has never benefited from a Medicaid Waiver. When my son was born in 1986---10 weeks premature and diagnosed with a rare condition which required a tracheostomy and ventilator to breathe, there were no such waiver programs in the state. We had private insurance, but were left with tens of thousands of dollars of out of pocket expenses after his first hospitalization of nearly 6 months. I was raised by a fiercely independent family----my father, Gordon Gilmer, was an elected official for 29 years, that taught me to “take care of my own”---work hard, pay your bills (and your taxes) and when problems arise---you deal with it. However, the staggering amount of medical bills we incurred was not something you could “manage”. Plus, the hospital wouldn’t even let hi
Family Voices Indiana is a family-led organization that provides information, education, training, outreach, and peer support to families of children and youth with special health care needs and the professionals who serve them.