One of the challenges of raising a child with special health care needs is the fact that you must work with many professionals in your child’s life. We have some tips/tricks we try to keep in mind when we’re trying to partner with providers: Develop relationships with professionals even before you need them. Before meetings, write down points to be discussed, questions to be answered, and decisions to be made. Try to create a cohesive, team-like atmosphere when talking with professionals. I have had several experiences with doctors, school staff, etc where I had to work a little harder at this, but more times than not, I gained respect. I was educated about the issues, and willing to listen to them and provide valuable input. Be sure you are educating yourself on the topic from reliable sources. Seek out professionals who demonstrate concern for you and your child. Learn your rights and the rights of your child. This is probably especially true in the special education sy
Family Voices Indiana is a family-led organization that provides information, education, training, outreach, and peer support to families of children and youth with special health care needs and the professionals who serve them.