Health Information Specialist, Heather Dane, shares her story about utilizing Institutional Deeming for her daughter, Mikayla. Factual information about deeming courtesy of Beth DeHoff, Pediatric Practice Liaison, Children’s Health Services Research, IU School of Medicine ; and also a mom of a child with special health care needs. When my daughter, Mikayla, was born at 32 weeks gestation the doctors told us to expect her to be in the NICU until close to her actual due date. That meant that she was going to be there for approximately eight weeks. They were pretty close with their approximation. She came home 49 days later. This was not the first time I was faced with having a child with special health care needs. My son, Joseph, has special health care needs as well, so I was already familiar with most of the programs I needed to apply for. I filled out the application for the DD and SS waivers (note: now the FS waiver). I made an appointment with the Social Security o
Family Voices Indiana is a family-led organization that provides information, education, training, outreach, and peer support to families of children and youth with special health care needs and the professionals who serve them.