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Newborn Screening Family Education Survey

Welcome to Expecting Health's Family Education Survey!

Thank you for your interest in participating in the Family Newborn Screening Education Needs Survey! This survey is being conducted by Expecting Health, a non-profit organization focused on engaging families and health professionals in pregnancy and newborn health.

If you agree to participate, you will be presented with an online survey. The goal of this survey is to learn about families’ needs and priorities around newborn screening information. The questions will ask you about your:
  1. Familiarity with different topics around newborn screening;
  2. Preferences on how to receive health information; and,
  3. Newborn screening education needs.
This survey takes approximately 20 minutes to complete. You may opt out of any question.

In appreciation of your time, you can be entered to win a $75 gift card. One participant will be selected by 6/15/2019. Only the person selected will be notified. You might not benefit directly from completing the survey, but your answers will provide a basis for the development of a more effective newborn screening education program for families. Survey questions do ask about your geographic area, income, and health insurance status, but we will not use this information in any way that would lead to identifying who you are. We are not aware of any risks associated with completing this survey, however any online activity does pose a risk of a breach of data confidentiality and personal privacy. To the best of our ability, your answers to this survey will remain confidential. We will only be collecting your email address if you choose to enter to win the $75 gift card. Your email address will be collected through a separate form and will not be connected to any of your answers. Your participation in this survey is completely voluntary, and you may opt out of the survey at any time. 

If you are interested in the survey results, a summary will be posted on our website,, by September 2019. You may also sign up for our email newsletter and read other useful health information on our site.

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