The National Coordinating Center for Epilepsy (Center) is seeking expertise from young adults with epilepsy as part of its national needs assessment regarding the health care of children and youth with epilepsy (CYE). The mission of the Center is to support those working to improve access to coordinated, comprehensive, quality care for CYE, particularly in medically underserved and/or rural areas across the life-course. As part of its Innovations in Access to Care for Children and Youth with Epilepsy project, the Center is offering two opportunities for young adults to participate in a needs assessment project. You can participate in a focus group, complete an electronic survey, or do both. You must be 18 years of age or older and have been diagnosed with epilepsy to participate in this project. Focus Groups: If you would like to provide in-depth feedback regarding your health care experience, please consider joining Center staff for a one-hour focus group. You will rece
Family Voices Indiana is a family-led organization that provides information, education, training, outreach, and peer support to families of children and youth with special health care needs and the professionals who serve them.