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Showing posts from May 9, 2021

PAID Opportunity for Parents and Families: Virtual Round Table Discussion

The   National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH)   will be hosting a virtual round table discussion and is looking for Black and African American families with children with special health care needs or disabilities to come together with child health experts to discuss how to foster trust and collaborative decision-making between families and pediatricians.   To participate in the discussion, applications can be submitted  here  and will be accepted through  May 28 . All participants will be paid for their time and participation. Please contact  Jamie Jones , Manager of Medical Home Initiatives with questions. NRC HE Virtual RT Flyer 2021 by Family Voices Indiana on Scribd

The Work to Include Virtual Employment First Summit at A Glance

May 25, 26, and 27, 2021 The Work to Include Coalition is planning our second Employment First Summit on May 25-27, 2021 from 1:30 to 4:30 pm daily. The primary audience for the WTI Employment First Summit is individuals with disabilities, families, employment service providers, advocates/advocacy organization members, legislators, state agency personnel, and educators. All Coalition members are invited to attend. On May 25 (Day 1)  we will hear updates on Employment First in Indiana from state agency leaders. Our own Lieutenant Governor, Suzanne Crouch will provide an overview of Indiana's efforts toward disability-inclusive hiring. Bob Lawhead, Colorado Developmental Disabilities Council, will provide an example of how Colorado has put their money where their plan is and how that is working. Julie Christensen, the Interim Executive Director of APSE will tell us about how the Biden Administration is approaching Employment First and pending federal legislation.   On May 26 (Day 2) 

Telehealth Toolkit for a Joint Visit with Pediatric and Adult Health Care Clinicians and Transferring Young Adults

This tip sheet from Got Transition  offers pediatric and adult clinicians sample content that can be used to facilitate a “warm handoff” to adult care as well as a sample resource for the transferring young adult that explains the telehealth visit. Having a shared communication between the past and future clinicians and the patient helps to strengthen continuity of care. It also helps to improve the comfort and confidence that the transferring young adult and their parent/caregiver has with their new clinician. It represents an important opportunity for the transferring young adult and their parent/caregiver to convey their preferences and ask questions. Telehealth Toolkit - Full by Family Voices Indiana on Scribd

Show Your Support for Medicaid Home and Community Based Services

From  Justice in Aging Medicaid serves as the foundational program of our country’s care infrastructure providing the wide range of home and community-based services (HCBS) that older adults and people with disabilities need to remain living at home and connected to their communities. Unfortunately, however, Medicaid HCBS has been underfunded and neglected, leaving many older adults, people with disabilities, and their families with few options, while undervaluing the direct care workforce that earns poverty wages.  That’s why, in April, President Biden announced $400 billion in funding for Medicaid HCBS as a key component of the American Jobs Plan. This funding represents a 33% annual increase in Medicaid HCBS–an investment that would dramatically strengthen our care infrastructure by expanding access to services and supporting the workforce. But this commitment is not yet law. Congress and the White House need to hear from us all about how critical this $400 billion investment is to

Emergency Broadband Benefit Enrollment Open

Enrollment for the Emergency Broadband Benefit is now open. The temporary benefit provides a discount of up to $50 per month toward broadband service for eligible consumers who are struggling to stay connected during the pandemic. Qualifying households on Tribal lands can receive a discount of up to $75 per month for service. See if you qualify by visiting www.fcc.gov/broadbandbenefit

The NIMH Director’s Innovation Speaker Series: Genetic Clues to Autism Heterogeneity

  Date/Time :  Thursday, May 13, 2021, 3:00–4:00 PM ET Location : Virtual On May 13, 2021,  Elise Robinson, Sc.D. , will be the guest speaker for the  NIMH Director’s Innovation Speaker Series . Dr. Robinson is an assistant professor of epidemiology at the Harvard T.H. Chan School of Public Health and an institute member of the Broad Institute of MIT and Harvard. Dr. Robinson is also an affiliated faculty member with the Analytic and Translational Genetics Unit at Massachusetts General Hospital. Dr. Robinson’s research focuses on the genetic epidemiology of behavior and cognition. Recent studies have produced a wealth of genetic associations to autism spectrum disorders (ASDs) and related neuropsychiatric disorders. Dr. Robinson’s lab focuses on the interpretation of these results using detailed human behavioral, cognitive, and medical data. Dr. Robinson will discuss rare and common genetic risk factors for ASDs, and the association between those risk factors and ASD heterogeneity. Reg

SSI Recipients and Economic Impact Payments

Original from  National Center on Law & Elder Rights Supplemental Security Income (SSI) recipients who do not typically file a tax return should have received their third economic impact payment (EIP) automatically in April 2021. Those who receive their SSI benefits electronically by direct deposit or Direct Express Card should have received their EIP in the same way around April 7. Those who receive their monthly SSI benefits by check in the mail were mailed paper check EIPs beginning April 9. The Social Security Administration (SSA) will  not count  any of the EIPs as  income  for SSI recipients, and the payments are  excluded  from  resources  for 12 months after receipt. Many SSI recipients received their first EIP under the CARES Act in May 2020. They are now approaching the end of the 12-month exclusion period for the first EIPs starting on June 1, 2021, when any remaining CARES Act EIP funds they still have which puts them over the $2,000 resource limit ($3,000 for an eligib

Case Management Innovation webinar for individuals and families

Last week the Bureau of Developmental Disabilities Services announced new information related to the Medicaid home- and community-based waiver redesign project including changes to the way case management is delivered. During the waiver redesign process, we received feedback from individuals and families that improvements are needed in case management training and consistency. With these identified needs and available approaches, we have started an initiative known as Case Management Innovation. To help individuals and families learn more about Case Management Innovation and receive updates on our waiver redesign project we are holding a webinar on May 17, 2021, from noon-1 p.m. EDT, to join the webinar please  click here . Frequently asked questions regarding the Case Management Innovation have been developed  for individuals / families and can be found on the  Case Management Innovation webpage .    DDRS continues to appreciate and value the input and feedback that individuals and fa

Ask The Arc Webinar Series-Guardianship & Alternatives

Have questions about guardianship and alternatives to guardianship? The Arc of Indiana has answers!  Learn more and register  for their free Ask The Arc Webinar –  Making an Informed Choice: Know the Facts and Options about Guardianship Thursday, May 13, 6:30 p.m. – 8:00 p.m. EDT.

Mental Health Monday-Adapting After Trauma and Stress

May is Mental Health Month.  Mental health is essential to everyone’s overall health and well-being, and mental illnesses are common and treatable.  Each Monday in May, we are going to share topics and tips from  Mental Health America . Adapting After Trauma and Stress by Family Voices Indiana on Scribd