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Showing posts from October 31, 2021

Caregivers and Clinical Trials

The National Alliance for Caregiving (NAC) is convening a 3-part roundtable series to identify and communicate the value of caregivers’ participation in clinical drug trials and to discuss strategies for improving how researchers engage caregivers from populations most impacted by structural inequities.   Project overview information attached. Please feel free to share.   NOTE-  complete this   interest form   by Monday, November 8th. NAC -CCT Project Overview Final by Family Voices Indiana on Scribd

What’s New for 2022 Marketplace

  A blog post from the Center on Health Insurance Reforms (CHIR) highlights what’s new for the 2022 Marketplace Enrollment that starts next week. The Enhanced Premium Tax Credits that were part of the American Rescue Plan (ARP) Act continue for 2022. For 2021 only, the ARP provided additional subsidies for people who were approved to receive unemployment insurance at some point during the year. If consumers didn’t have the extra subsidies applied during the year, they can claim the credit when they file their 2021 taxes. In 2022, households with an income under 150% of the federal poverty level will be eligible for a monthly special enrollment period. Consumers who fail to reconcile their tax credits will not risk losing their advanced premium tax credits (APTC) for 2022 nor will they be required to pay back any excess APTCs for 2021. PrEP (a daily pill to prevent HIV transmission) and essential support services for taking the medication, must be provided without cost sharing. A new fe

504 Protections & Mental Health

  From  IN*SOURCE A student with a condition such as anxiety, depression, or a substance use disorder can have a mental health disability and would be protected by federal civil rights laws. These laws require K-12 schools and postsecondary institutions to provide students with an equal opportunity to learn, free from discrimination, including during public health crises.  Please review this document for more information. Ocr Factsheet Students Self Harm Covid 19 by Family Voices Indiana on Scribd

Case management organization virtual and in-person meet and greet events

The Bureau of Developmental Disabilities Services will be hosting multiple virtual and in-person meet and greet opportunities for individuals and families to learn more about each of the awarded case management organizations. The Arc of Indiana will be planning to partner with BDDS in these opportunities and serve to support BDDS efforts as well as being an additional support to individuals and families.  The following CMOs will participate in each of the meet and greet opportunities: CareStar of Indiana The Columbus Organization Connections Case Management Indiana Professional Management Group Inspire Case Management Unity of Indiana The virtual meet and greet opportunities will take place as follows: Wednesday, Nov. 17, 2021, 7 – 8 p.m. EST   Click here to join Thursday, Nov. 18, 2021, 1 – 2 p.m. EST   Click here to join Friday, Nov. 19, 2021, 10 – 11 a.m. EST   Click here to join Each case management organization will provide a brief summary of their agency and their contact informa

Indiana Mobility Summit

  [Image description: A white graphic with an olive green border. Large script at the top says, "Indiana Mobility Summit" in green. Black print below the title says "Nov. 16, 10 a.m.-12 p.m. and 1-4:30 p.m., and November 17 10 a.m. to 12:30 p.m. On the left side is a black circle outline with the HbD logo inside, and on the right side is a black circle outline with the Governor's Council for People with Disabilities logo.]   You’re invited!   Join Health by Design in partnership with the Governor’s Council for People with Disabilities for the inaugural Indiana Mobility Summit.   This virtual event will bring together transit agencies, state agencies, and mobility advocates from around Indiana for an action-oriented conversation on the state of our current transportation system and the related challenges facing Hoosiers. Summit attendees will learn about the transportation and mobility challenges facing Hoosiers of all ages, abilities, income levels, and backgrounds.

Advance Care Planning Resources

  From  Indiana Department of Health Advance care planning (ACP) is not just something to do when you are older. Planning for health care in the future is an important step toward making sure you get the medical care you would want, if you are unable to speak for yourself and doctors and family members are making the decisions for you. Advance Care Planning (ACP) Resources Advance Care Planning: Health Care Directives This website from the National Institute on Aging provides a variety of information including a description of ACP, how to get started, steps in making your decisions known, and what to do after you set up your advance directive. Visit Site Advance Care Planning Resource for Hoosiers The Indiana Patient Preferences Coalition promotes education, resources, and advocacy in support of high quality advance care planning that upholds the personal dignity and values of Indiana residents nearing the end of life. Visit Site Advance Directives Resource Center The Indiana Departmen

COVID-19 Vaccines and Children with Disabilities: Ask the Expert

Do you have questions about COVID-19 vaccines for young people with disabilities? With rapidly changing eligibility guidelines around vaccines and booster shots, it can be confusing and worrisome for parents who have a teen or child with a disability.   The Center for Health Equity is hosting a webinar featuring Dr. Mary Ciccarelli, Founding Director of the Center for Youth and Adults with Conditions of Childhood at Riley Hospital and IU Professor of Clinical Medicine and Clinical Pediatrics.  Dr. Ciccarelli will focus on vaccine information for parents of children and adolescents with disabilities and answer the questions asked by attendees. Parents of children with disabilities will share first-hand perspectives on vaccination and protecting their child and family.   The free webinar will be on  November 4, from 1:30 to 2:30 pm EDT . Captioning and Sign Language Interpreting will be provided.  The Center for Health Equity is part of the Indiana Institute on Disability and Community,