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Showing posts from November 14, 2021

Indiana Direct Support Workers: Indiana needs to hear from you!

The state of Indiana is looking for 8-10 direct support workers to serve on an advisory group to share your experiences and needs. The state knows that you are the backbone of the long term services and supports system. Who:  Direct support workers help older adults and people with disabilities to work and live where they want. This includes individual homes, assisted living facilities, nursing facilities, group homes or a home shared with their caregiver. Examples of direct support workers include: Home health aides Personal care attendants Certified nursing assistants Licensed vocational nurses Direct support professionals Community health workers Please note:  We are not looking for directors, managers, owners or other administrative staff to apply. We want to hear directly from the staff working in the field and providing care and support to others. What:  We want to hear: What is important to you? What training would be helpful for your job? What, if any, barriers exist to staying

EXPAND clinical research study

Researchers are looking for children and young adults who may be interested in taking part in the EXPAND clinical research study. This study is evaluating how well the body tolerates an investigational medication and whether it works for childhood absence epilepsy (CAE) and juvenile absence epilepsy (JAE). To see if you (or your child) may be able to take part in this absence epilepsy study,  learn more here.

We're Hiring!

  About Special Kids (ASK) is currently hiring a Bi-lingual Parent Liaison. The position will support our efforts in the state of Indiana. The Parent Liaison will provide information, one-on-one educational training, and support to families who are raising children with special healthcare needs. This position requires reflective listening skills, understanding of individuals from diverse cultures, ability to communicate effectively both on the phone and through written email and letters, and basic understanding of the services and supports available to children with disabilities and their families. The candidate must speak both English and Spanish. Additionally, this position will serve families in an Indianapolis community location at least one day per week. Parents of children with special needs (physical disabilities, mental health diagnoses, chronic health conditions, developmental disabilities, etc) are encouraged to apply for this position that will provide parent to parent supp

Research Opportunity for families

 

SUDEP Communication Survey

Are you a parent or caregiver of a child with epilepsy? Help The Child Neurology Foundation  understand how healthcare providers can best communicate information about Sudden Unexpected Death in Epilepsy (SUDEP). Participate in the survey via  the link here .

The ANCHOR Study

The ANCHOR Study is looking at a potential new medicine (an investigational medicine) for children and teenagers with irritability associated with autism spectrum disorder (ASD).  See if your child qualifies here .

The Sandwich Generation

  Join us, Christina Irving, the Client Services Director at  Family Caregiver Alliance , and Kathy Hennis, a 39-year-old parent and caregiver for a  live webinar  on  Wednesday, November 17 at 2 pm EST  to learn: How to recognize changing roles and dynamics within the family when caregiving; Juggling multiple responsibilities and demands; and How to cope with the stress of caregiving and take care of your own mental health.  Register now

Family Friendly Referral Guide

New! The AAP offers a free  Family Friendly Referral Guide  focused on supporting families and caregivers whose child has a developmental concern. Pediatric practices can customize this guide with information about local referral resources, and then use the guide to support families/caregivers in understanding what to do if a developmental concern has been identified. The guide also illustrates the importance of following through with developmental referrals.  Visit the AAP  Developmental Surveillance and Screening  webpage to view and download these and other resources.

We're Hiring!

About Special Kids (ASK) is currently hiring a Bi-lingual Parent Liaison. The position will support our efforts in the state of Indiana. The Parent Liaison will provide information, one-on-one educational training, and support to families who are raising children with special healthcare needs. This position requires reflective listening skills, understanding of individuals from diverse cultures, ability to communicate effectively both on the phone and through written email and letters, and basic understanding of the services and supports available to children with disabilities and their families. The candidate must speak both English and Spanish. Additionally, this position will serve families in an Indianapolis community location at least one day per week. Parents of children with special needs (physical disabilities, mental health diagnoses, chronic health conditions, developmental disabilities, etc) are encouraged to apply for this position that will provide parent to parent suppor

“COVID-19 Vaccines for School-Aged Children: What Parents Should Know” Webinar

Please join the U.S. Department of Education for an informational webinar following the approval of the Pfizer-BioNTech age 5-11 vaccine.  During the webinar, representatives from the U.S. Department of Education, the  Centers for Disease Control and Prevention  and the  American Academy of Pediatrics will address common concerns among parents and families about the COVID-19 vaccine for their child(ren) ages 5-11. This is an opportunity for families to express concerns, ask questions and discuss how to sustain safe operations in schools.   Register in advance for this meeting  here ! After registering, you will receive a confirmation email containing information about joining the meeting.